I ended up leading the first 30 minutes of today's meeting, which was pretty cool. I came with a lot of questions and got a lot of answers. This post will be a summary of all of the answers and decisions made in that time.
1. Medical records will be filled out by the patient and omitted questions will be filled in by a PCP. All records, or at least Genotype and Cirrhosis, will be reviewed by the PCP. Here are the medical rec questions agreed upon:
- other medical conditions (hypertenison, HIV, cirrhosis, depression, diabetes, thyroid disease, cancer)
- prior treatment history? yes/no
- if yes, response? cured/relapse/nonresponder
- AND # of times relapse
- genotype: 1a, 1b, 2a, 2b...6a
- vaccination history (Hep A, Hep B, flu, pnemonia, etc)
- liver biopsy? yes/no
- year of biopsy
- stage of liver disease/cancer
- FibroScan Score (0-75)
2. The patient will enter medications taken and procedure for each will be provided in a "how to." The patient can set a reminder similar to that of the MyPillbox app that will repeat daily. Then, the patient will record if taken/missed/skipped, actual time taken, etc. (following mypillbox layout). The NOTIFICATIONS will appear on the home screen.
3. For "My Symptoms" we agreed on having 15 typical symptoms/side effects as Dr. Weiss compiled from studies and kindly dropped into Dropbox. Each will have a 1-10 scale of severity green/yellow/red. If red, it will be a "red flag" to call a doctor. If yellow or red, a "quick tip" will be provided."
4. We will continue with the stepping-stone idea with 5 levels. However, this will provide a general stance in treatment, whether it be registering, pre-treatment, treatment, post treatment, or achieving a cure. Within each level, there will be a bar that fills up based on completion of required tasks. For pre-treatment, seeing doctors, providing info, etc. For treatment, attending appointments, logging viral load and symptoms and taking medications...
5. The patient will have a support team, titled "My Support Team." Instead of having to search for the doctor AND each of her associates, the patient can type the doctor name and the fitting names registered in the database will be provided (appearing as the patient types the name just like Google). Then, the doctor and her staff/team will be listed and a plus sign (+) will appear next to each name. If the patient wants to include each, he can. If not, he doesn't need to add a doctor for any reason and can add the psychologist, nurse, etc that he is dealing with.
6. After each doctor's visit, the patient will receive a print out of the labs and enter them into the app. Another option is to just input the viral load while in the office, or the doctor can upload it into the patient's account.
7. "My Calendar" will allow the patient to log appointments with doctors, blood draws, support group visits, etc and log results. Reminders will be shown on the home screen for appointments and then the patient will be asked if he went, missed, or rescheduled. If attended, and indicated what the appointment was for (eg: blood draw), then the patient will be prompted to log viral load there. No lying if you didn't go to the appointment!
8. A report card will be generated daily based on symptoms logging and taking meds and there will be weekly checkpoints if the patient went to all appointments and followed the treatment plan. There will also be a checklist for pretreament and a bar that fills up as requirements are met. Once the bar tracker is filled, tasks are met, and the patient can proceed to treatment.
Well, clearly the meeting was productive :D I am also gearing for presenting my app on August 13th from 12 to 1. I will also sit in on Jeremy's presentation tomorrow at 5pm.
Dr. Atreja--if you're reading this, it will be helpful to fill you in on the first half of the meeting ;)
FEEL BETTER! I know, being sick sucks :( I hope that you get well soon and thank you for being so understanding of my sick days. I
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